I was looking for new ways to connect with my mother.
While some things are the same since she was diagnosed with Alzheimer’s disease two years ago – she loves dessert and has a Lucille Ball type sense of humor – others are different. Now, at 89, she’s confused much of the time and often seems restless, in search of something to do but not sure what that something should be.
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When I visit, it’s often a quiet place. I think people with dementia are aware of what’s going on, but they often aren’t sure how to communicate back to the world.
My perspective changed one day when I visited during a music event in the chapel.
My mom, and others, were up and away from their walkers and wheelchairs, singing, dancing, swaying and smiling.
How could this be? I had a feeling that if people who were barely verbal or immobile a few minutes before could transform into this joyful bunch, anything would be possible.
Listen to Oakwood Village Prairie Ridge residents sing along with staff and family to “Moon River” and “Side by Side.”
I wanted to understand this, and be around it more. I’m a producer for the show “To the Best of Our Knowledge,” where we are always looking for new ways to explore our selves and our worlds, so I decided to produce a show, “Music On Your Mind.“
Right now, 5.8 million Americans have Alzheimer’s, according to the national Alzheimer’s Association. That number is projected to grow to 13.8 million by 2050, if no cure or significant medical breakthrough is found.
Shannon Henry Kleiber, right, and her mother, left. Photo courtesy of Shannon Henry Kleiber
I talked to Melissa Cole, who is a music therapist at Oakwood, and Christa Iverson, the community’s life enrichment coordinator. They invited me to other group events, a drum circle, and a group sing-along that takes place every week.
At the drum circle my mother sang every word of “You Are My Sunshine.” She told me she remembered her mother and father playing that song.
My mother also loved singing in church, and she would always tell me: “Singing is twice praying.”
At the group sing-a-long, the residents arrived, parked their walkers and sat in a circle in the memory care activities room. About half had memory loss and half were independent living residents who help lead the others in song.
Research on music therapy has shown it creates sensory stimulation in people with Alzheimer’s and other dementia, and can be a nonmedical treatment option for anxiety and stress.
Mary Marohl, 95, loves to sing with the group and helps keep them organized and inspired.
![People sing along at Oakwood Village](https://www.wpr.org/wp-content/uploads/2019/08/musicians.png)
Each singer had a copy of the lyrics for the more than 20 short versions of songs. In unison, the (mostly) women and some men sang “Moon River,” “Side By Side,” “Chasing Rainbows,” and twice, because someone asked for it to be repeated, “Edelweiss.”
These are American classics that are beautiful and familiar from their lives. As Marohl said: It doesn’t matter if someone hits a wrong note. It matters that they feel the music and have fun.
If I did not know who was in memory care and who was not, I would not have been able to tell. Everyone sang most every word. Some of it must have come from memory.
One woman in a wheelchair, eyes closed, was not singing. But then I noticed she was smiling and her foot was gently tapping.
Listen to Oakwood Village Prairie Ridge residents sing along with staff and family to “Chasing Rainbows.”
Listen to Oakwood Village Prairie Ridge residents sing along with staff and family to “Edelweiss.”
Music was waking up something within each of them. It is a universal language, it is something that even as we grow older and change, does not leave us entirely.
The arts, whether it is music, dance, poetry, painting or theater, stir the greatest emotion in us for the longest periods of our lives. If we open ourselves to the sound and beauty, this is how we will always connect with each other.
Resources About Memory, Alzheimer’s Disease And Music
- Alzheimer’s Association
- Alzheimer’s and Dementia Alliance of Wisconsin
- The Women’s Alzheimer’s Movement founded by Maria Shriver
- The Institute for Music and Neurologic Function
- American Music Therapy Association
- “I’ll Be Me” documentary about musician Glen Campbell
- “Alive Inside” documentary